Thursday, May 28, 2009
To Mr. Top Notch
I heard a rumor that you think I'm mad at you.
Well I'm not mad at you at all. So stop this silly nonsense thinking I'm mad at you. I got your message loud and clear the last time we spoke about bothering you with phone calls
Why should I call you Mr. Top Notch?
Your just an Artist a headen for the top
Me I'm nothing
a no one
just a ditsy white bitch
of a speed bump in your way
I'm not dense
I can take a hint
and show myself out the door.
Cuz you made it loud in clear
through the silence that u keep
I've got nothing to bring to you
I've got no names for you to drop around
I got no useful contacts that you can use
I've got no booze nor the right kinda juice
I don't even have the grass you need to feed your dreams
I got no plastic money or Benjamins that you can spend
and It sure seems like that's what it takes to be your friend
So no hard feelings on either side
We both know that it just isn't meant to be
All I could ever be is just a friend
someone who you wouldn't need to pretend with
someone who knew you back in the day
before you get blinded by all the bling
and heated by the hot spot lights
I honestly wouldn't be
someone who would get in the way
But you don't need that
you made it crystal clear
the last time we spoke
to this ditsy white bitch
You simply stated that
You've got all the friends,
bitches and hanger ons
for when you get to the top
that you need
I'm not dense
I can take a hint
and show myself out the door.
Cuz you made it loud in clear
through the silence that u keep
So you don't have to worry about me
I'll still think you’re the best
So cleverer than the rest
Quickest to spin
Slickest to win
You'll shoot to the top
and you won't stop
Seriously I know the score
and I know it's time for me to take a powder
an head to the hills
So as wise a brother as you are
You do to
cuz you've made it loud and clear
through the silence that you shout
I'm not dense
I can take a hint
and show myself out the door.
Cuz you made it loud in clear
through the silence that u keep
Let's be honest with each other
All I'll ever be is a ditzy white bitch
of a speed bump in your path
slown you down
stoppin you from headen to the top
so better we stop before it's too late
but know that there's a
ditsy white bitch that
believes in you
she'll be quiet in the hills
remembering the beats you did
Your going to the top
it won't be long son
the extra money will be pour in
suddenly you'll find tons of friends,
Official Bitches, and wanna be yous
hangin around
just be careful that they don't try to
bust a gun on you.
It's a dog eat dog world up there
Jealousy can rear up at any time
Just be careful you don't die
I hope that while I am in the hills
I will see your star shine bright
I hope I don't read that you die
But should it happen
know that someone will cry
and die a little inside
cause that's what friends do
Even when it's been made
so loud and clear that
I'm just the ditsy white bitch
speed bump in your life.
as I said before
I'm not dense
I can take a hint
and show myself out the door.
Cuz you made it loud in clear
through the silence that u keep
Peace Out
To Mr. Top Notch
It's been brought to my attention that you might believe that I'm only in it for what it will bring to me.That's quite sad because it's furthest from the truth. I don't want what you might think I do.
Furs: There too hot to wear and tend to make me sneeze besides all that there just way too much of a hassle.
Diamonds & Pearls: There worthless in my eyes, cause all they do is get in the way. They also bring nothing but a constant fear. I don't need to live trapped like that. who wants to be afraid of losing a friend because of a stupid rock that might disappear Cause in my day to day routine it could happen.
Cars: That would be so cool cause a new set of wheels has always been a dream to me.But lets be honest as friends should be. Mine time for such treasures is passing by fast. the wide open window of being able to drive a tricked out ride is closing fast. It will soon just be a hunk of junk left to rust in between the times when I can get in and sit for a chance to pretend that life is different than what reality is.
Candy: I'll pass just the same. It's not that I'm watching my weight. The kind I really like is too hard to find and I'm lame as I just don't want to deal with a toothache. Besides I'm sure you can spend your money on something sweet for you.
Crib: Now theres a greater temptation and another dream of mine. I'm gonna need to sit down so I can remain strong and don't cave in. But I have witnessed it being the end between friends all to many times and I don't want to do it again.
Plane rides to see my "only friend" Maria and you. Your the best. But again lets be honest as friends should be. It's nice that you think of me jetting to be with you two. But the problem is and no I don't jest. I'm a horrible selfish bitch you see I want to keep my eye sight if you please. So that means I probably will never get to meet you or see Maria again. It breaks my heart to have to choose between seeing you on stage and in the news or flying off to far off places. I'd rather be able to witness your star shooting to the top from a far 1st hand not 2nd hand when someone can be bothered to take the time to relay it.
Money I don't want it Yes, it true it's something I need and can use. but not if it means the beginning to the end of us being friends. It's nice to have and it's great to spend but it really only ever gets in the way between friends. I've had money and I've had none. I've had friends with no money get some. They moved up this world as only money can do. So instead of chillin in the crib like we used to do, watching movies and eating snacks or going to the cheap seat movies in town, or going out to the joint to shoot some pool; they've all got better things to do like chillin with the local stars, and spending their money like fools. They wear dark shades so they don't have to see me. they keep the ipod up full blast as they go by so they don't have to hear me. Between the shades and the ipods they can easily block me; they don't have to see me cry and they don't have to deal with watchin me die. But like the fool that I am I still get extra snacks and I save a little cash in hopes that soon they will turn around and remember that I was there when they were down. I dont' care that they are living a dream. I remember when cold soup straight out of a can was a special treat just like that jar of caviar they sample instead.
Flowers: Hell No!!! They just make me sneeze. Why waste the money on something that is dying from the moment you get it to give? That's money wasted that could have gone for far better things. However, if you insist that it's flowers I need. Save them for the most appropriate time at my end. You can if you so desire give them then or maybe you'll have a flunky who can save you time and do it for you. Cause at my grave is the place for them.
I hope that you can begin to see that its your friendship that means something to me not what you can do. It's simple and true.
It's nothin to do with material gain for me from you. What I could gain is something far greater to treasure. An anchor to earth, a shoulder to lean on, a face that would search for me in a crowd, maybe a bean of light during my dark hours, someone who would know my name and not hold it against me, Someone who would dare to call me a friend. These are things I too could give you as poor and as dumb as I am. Cause when it's over and done with from beginning to end there's no greater treasure than having a friend.
Your flat out refusal to chat, return messages, or pick up a call. All your silence has made it perfectly loud and clear. So lets be honest and quit playing games, I'm just a silly white chick with nothing for you.
Peace out.
Saturday, May 23, 2009
Scarface
It was back in grade school. I had been blessed with having pleased my mother. What or why I don't recall. I do recall the reward. The reward I was given was time with some kids who were sort of my friends. I say that they were sorta my friends because I don't know if they would have been my friends had they not been forced.
See my step-father's brother had a wife and several girlfriends. One had 4 children, 2 boys and 2 girls. It was these who were the friends I would get to stay with. I went down to their house and got to stay for dinner. I even got to stay the night. A rare treat for me. These particular friends also had a dog. A dachshund. A standard sized dachshund to be exact. This dog was called Peanut.
Peanut is an import character in the following of this story. See it's because of Peanut that I got my nickname. Peanut was a kind dog for the most part. The brothers would tease him from time to time. The girls would use him as a doll. But as time went on there were subtle changes in Peanut. He'd be a bit more edgy in a sense. He'd be a little quicker to snap.
Now me I wouldn't ever participate in the teasing. I knew better than to tease an animal. I had been bitten before by dogs that had been ruthlessly teased by children. I also knew that to get caught would mean a hellish beating and disgrace. I tried very hard to be a good kid. Especially when it came to animals. Unless it was Puff but that is another story.
As I was saying I did get to stay for supper and I did go about helping with the evening chores. I would do this because I knew it would a) be reported back to my mother and maybe continue to please her b) it meant we could go have fun sooner as many hands make quick work of lots of tasks. So I was more than willing to help out with the evening chores so that we could do something fun when it happened.
The last chore to fun was feeding Peanut. I volunteered to put the scraps in the bowl. It was as I was crossing the floor to the food bowl that I should have gotten my first clue. Peanut came quickly away from the boys. Almost too quickly and he was all excited jumping around. He'd do that sometimes so I took no notice of it. It was when I was tipping the scraps into his food bowl that it happened. Peanut jumped up and grabbed my face.
I didn't feel pain as much as a dull tugging on my face followed by an incredible amount of odd sticky wetness. I don't know how he was taken off. I don't remember much more than the sickened horrified looks on the faces of those who were looking at me. The wet washcloth that the mom had put to my face with her strict order not to remove it. My uncle's calling to my parentals and then being pulled out of the house, and hurried up the street at a quick march to my parents. I remember the cold breeze and being drug along behind while at the same time being told not to say anything about peanut. How if he should have to be put down I would lose my only friends.
We were able to get into my house quickly. My mother was extremely angry. She rushed forward and took me to the bathroom to look at it. While hosenose and father spoke about what had happened with my uncle.
It was decided that I must go to the ER so I was pushed into the vehicle for the ride to the ER. I remember being mildly annoyed as I just so wanted to sleep and strangely terrified. I was afraid I would be put down like Old Yeller. I was afraid I'd have to tell and Peanut would be destroyed and so would my only friendship.
I remember lying on the bed feeling the scratchy sheet beneath my good cheek staring at the white walls. Wondering what would happen to me now. Not realizing how bad it was. My mother for once was doing a good show of being a mother. She was sobbing I could see the fat tears rolling down her face. I was touched to think that she was crying for me. Thou I should have known better. It didn't take long only a couple of weeks for me to learn the real truth. She hadn't been crying about me but the loss of money. That's what had her really upset. If I was badly scarred then who'd want to come play with me? Gone would be the money making weekends. But at the time ignorance was complete bliss.
She kept whispering to hang on and it would be ok. I'd survive it. The doctor that was on call turned out to be Dr. K. That was a good thing according to the nurse. Dr. K studied under a plastic surgeon for a bit. So he would know best what to do to save my face. It was at that moment that I concluded that I didn't give a damn about my face just as long as I didn't die of rabies. I had heard tales of the horribleness of rabies and had seen a rabid animal or two by that time. I didn't want to be like them.
The doctor came in and started barking orders. I had been very lucky he said. Had I not been wearing glasses the bite might have been much worse. As it was, there were just a couple of bad ones close to my eye. They'd need to be watched closely and I'd have to follow up with an eye doctor especially if they should fester. When he got through with me I had 9 different places that were cleaned and bandaged up. The doctor had decided to do an experiment. Instead of using the traditional needle and thread to repair my face and would have left definite scars, he decided to try using a new thing called steri strips to tape each spot together to see if they would heal cleaner without the nasty scars. He admitted that if it didn't work he could always stitch me back up. I left with a huge bandage on my face and strict orders to not speak more than necessary, to eat super soft foods and to drink with a straw. As he didn't want me to risk opening up the wounds .
It was quite the sensation in school. Everyone was curious about what had happened and what was under the bandages. Everyone was for a change very nice to me. Although it didn't last long. Soon it was back to normal the teasing, bullying, etc. The only real change is that instead of being called the old tired name of 4 eyes I got the new one of Scarface.
Oddly enough as time marched on and the scars faded away the nickname stuck. Always to the amusement of those who remembered seeing them for the first time. Always to the puzzlement of those who had never seen. Because as luck would have it the doctor was very good and what scars there were didn't last as sore thumbs blatantly calling attention to themselves. But I beg to differ. I see them each and every time I look in the mirror. Sure they are not there to those who never knew. There easy to over look but to me who saw them before they were taped up to heal and during the healing time. I can see all 10 of them. Originally there were 12. 9 that needed a lot of attention because of how they gaped open. 3 that didn't need so much attention. Cause they were little more like a minor cut and not deep. I feel them all when I smile. It's part of the reason you don't see me smile. I feel the pull and pain when I do and I hear the harsh horrified voice of the doctor and my parents about did I want to scar myself forever. Etc.
As for what happened to Peanut. I was true to my word. I never mentioned anything to anyone about the dog. I took the blame for his attack to a degree. I begged for him not to be put down on my account. But he was still taken away for quarantine to rule out rabies. Hosenose was fined for not having him up to date on his shots. And it was the beginning to the end of our friendship. They were rather upset and angry with me for him being put into quarantine for 14 days to rule out rabies. They are lucky that is all that happened as he could have easily been destroyed because of not being up to date on his shots and his aggressiveness. I was not the 1st nor was I the last one he bit. It's sad that this drove such a wedge in our friendship.
Peanut got more aggressive and snappish as time went on. Often not allowing the girls whom he had grown up with to go into the bedroom if he was in there or to sit, lie or touch the bed if he was on it. I don't know what eventually happened to him.in I assume that Peanut died at a ripe old age as was fitting his breed.
I do know that I was
Thursday, May 7, 2009
Music Touches Your Life
You walk into a gun department and you hear someone messing with the slide and that distinctive click and you instantly get the song "Bust My Guns" immediately comes to mind followed by "Cowboys from Hell... sparks fly from my double barrel 12 gauge... can't lock me in your cage... we're taking over this town..."
You are still in that same department and someone is talking about something that happened on patrol in another city/state and your mind goes back to "Body Count" and "Cop Killer".
You run into someone that you used to know but who you don't care to remember or associate with... they ask if your still with the loser you where with back in the day. And what pops in your head... "Get to Know" along with "When Doves Cry" and while your waiting for them to put a break in there rant so you can politely walk away... Your mind drifts back to the day of driving around with your man and his friend with the speakers blaring "Cowboys from Hell", "F*n Hostile", "Psycho Holiday" "Primal Concrete Sledge", "Cemetery Gates", "Walk", "Harvester of Sorrow", "Justice for All", "Nothing Else Matters", "Enter Sandman" "Sad But True" and many, many more...
So you half smile which is totally taken that you've been listening to the last 10 minutes or so of yak and you desperately hope you haven't agreed to something nasty.
But this triggers many other associations.
You can smell the the burgers from "Sandys", "Marlboro cigarettes" and you can smell the tang of both gun smoke and powder, you can feel the smooth action of the slide of your "Rugar" and the "Llama" and you feel your heart break. As you head to the restroom to try to a) get yourself under control and b) to hide the tears pricking your eyes... You can hear the debates that you listened to oh so long ago... About guns, movies, actors, music, controversy... As the tears run down your cheek you remember the precious days of going shooting and hunting killer man eating misc. trash left at the range. you remember the surprise of mouse, gerbil, and snake. You remember the scares, You remember learning to identify brass, and coming back to the strong stench of gun oil as you cleaned and serviced your weapon and then the days of movies, cheap food, and counting, weighing, measuring and packing rounds for the next outing.
It's only when your interrupted by the pleas of a little child to hurry up that you realize with the pain of a sucker punch how time has marched ruthlessly on and those days are gone...
You move on to another store and there's music playing in the back ground... The cashiers are talking about the old songs being played and you can't help but feel odd. You never considered yourself old. But you remember these songs... not only do you remeber them... You remember eagerly awaiting their release. Going to a concert and hearing them live. You remember the thrill and excitement of sneaking out with your friend to attend the concert. The makeup that was puttied on, the can and a half of Aqua Net, the pain of burns from the curling iron with the pull of the comb as your hair is forced into a dizzy height and wearing clothes that you normally wouldn't be allowed to touch let alone be dressed in. The nagging if you should get caught feeling and the acceptance of what would happen if you were... You experience an odd mixture of physical recoil and nausea as you remember the last time you were caught. Your mind can't stop playing the sounds, smells of that time. The crack and sting of the lash, the feeling of running water on your back only you smell the copper tang so you know it's not water that's running down, and the intense pain. Your brought out of this by the laughter of your friend and her Grandma. Remember the awed surprise that your friends Grandmother would stoop to helping you go to the concert.
You just can't help to smile and as you go on through the rest of your time out scents, sounds, sights, and talk just bring back clearly how much music has touched your life.
Step By Step
You are so torn between excitement and concern, jubilation at the
beginning of a new voyage and terror at the unknown. You need to talk
to someone to help you get through this time time. Your family doesn't
want to hear any more about it. It has reached the point that they
suddenly are very helpful with getting chores done. Especially those
that help them to avoid hearing any more about your little project.
You still want to get it out there to someone else. Not only because
it's exciting and something fresh to talk about. It's so that someone
can warn you to jump ship in time. You have doubts that are entering
in. You want to have someone with fresh ears hear you out and help
dispell them and you want someone to stop you if what your doing is
wrong. Especially when you know you can't trust your family to help
stop you. (Mainly because they are all in some stage of a talk induced
coma ;-) )
Yet you still have to be Quiet. So what do you do? You get out a gag,
or if your like me you chew gum. Yes, I chew gum. I know it's a vile
disgusting habit to many. I really hope you won't think less of me for
knowing this little quirk of mine. I do it for a few reasons but I'm
more prone to gum chewing when I need to be quiet about something. No,
I'm not sure why; other than being told to bite my tongue a lot as a
kid growing up. Especially when it came to things one (mainly me)
needed to be quiet on, followed by being handed a stick or piece of gum.
Your just bursting at the seams with keeping your mouth shut. You feel
incredible pity at the 1st person who just happens to get in the path
of your raging river of words when the damn breaks, I mean gag comes
off... Because that unfortunate soul is going to have a deluge of words
come down on them and more than likely their ear talked off. Hopefully
your slow enough that they can at the very least understand what your
saying...
Well that's me...
I have learned that my place in bidding has been officially accepted. I have to get my credentials approved and place a deposit towards a reserve bid.It is quite nerve wracking to be in this spot but also highly exciting.
NTLDR Error
Current mood:
In the middle of doing life as usual, gearing up for end of the quarter reporters for school, end of the month reports, CT's updates, etc. I made the mistake of thinking I could take a nap while a scan was run so I could finish up what I was doing...
My being in a napping position gave hot shot an idea that he could so get on the computer....
Well, his plan was to restart the computer. I don't know if he even logged me off or not. All I know is that he came into the bedroom in a royale panic. I wasn't to coherent at first being that I was majorly tired, and there was no mention of the children or the dog nor of blood, puke or the need for stitches. I just rolled over and went to sleep. This really ticked him off and he woke me again to the news that life as we knew it was over.
Our computer crashed. It would turn on but there was no data to be found...
In a state of dismal zombieness we took it to the computer shop. There was a glimmer of hope. They might be able to recover some of the files. So we had to figure out what was the most important files for them to try...
So not what a brain numb zombie wants to hear. How do you prioritize your files. Do you go for the school and business? which of those two is more important. Do you go for your photos? Do you go for music? Do you go for the medical records? Do you go for the SD stuff?
Now for those who don't know... I use some pretty specific programs for things I do. They aren't what you would call user friendly for brain numb zombie to remember. See in their uniqueness or paranoia as one person described it. They do save their files in a database format. However, so not anyone can use it they save it a tad bit differently. Here I'm trying to figure out exactly what the ".XXX" letters are. I know them when i see them but for the life of me could I recall it to tell the tech... All the while trying to get my brain to work on recalling what I need, my stomach is falling as I see the hope of these files slipping further and further away.
The tech took pitty on me or maybe he was tired of the deer in the headlights look that I so clearly had on my face. He said he'd try to do a all files recovery.
A few days out... we get the call. The computer is toast. There is nothing to recover at the level the tech is experienced in. This error is too great. He offers the platitude that there wasn't anything I did to cause it. This is just an error that happens to many with no rhyme or reason... And it's a bad error to have happen. It can't be predicted as to when or if it will happen.
As he goes on with more blabbering. My inner witch is awoken. I'm trying to figure out why he thinks it's something i did. I'm not the know it all hot shot who f***ed the computer up. I'm about to set the record straight when he switches to something better to hear. The puter is under warranty still. The hard drive failed. So we can get a new harddrive for it. FREE!!! Which I agree to but what about the other data... That's when the sales pitch begins in earnst. They can send it to a level 2 or 3 recovery unit and try to salvage what is there... However, it would be a minimum of $400. Is the data worth that?
Again I don't know how do you put a price on it? So I let him talk to the hot shot computer killer.
In the mean time we have been going through our supposed back ups. Those that I have are corrupted. Meaning nothing on them is any good.
Life isn't a bowl of cherries at this time
Current mood:
I'm sick so that don't help much.
A new pediatrician in town has dx my dc with autism. What ever gives you that idea? Don't mean to be snarky it's just frustrating because back in the day when it would have mattered and made a difference it couldn't be done. Now I get it regularly but still doesn't change things. There are no wonderful programs here to help my kiddos. So what's the use... She did give me a scrip for the incontinence supplies.
So I took it in to get the scrip filled and nothing but attitude. The clerk is such a snob and witch that I am amazed she don't break her neck tripping over the cluttered show room.
She took a look at the prescriptions and her attitude went from neutral to snooty.
She demanded ID 1st. Insisted that I had to show 2 forms. Plus had to bring the kids in to match their photo id with them. She wouldn't accept our state IDs. She wouldn't accept them because they are paper not the real thing. Doesn't matter that we got them from the DMV and they are on special paper and have the DMV seal and are legit and to be used until the real ones show up, and show just what our state ID's will show picture and information. So I had to use our school id's. Oh those were just barely good enough because they were made out of thick plastic like our state ID's will be made out of. She wasn't happy that they were cleared to be used. lol (best $20 I spent
Then she saw the Medicaid cards. Where those good enough NO. She demanded other insurance. Well we ain't got other insurance. IF we did you'd of gotten that card shown to you. Also, if we could get other insurance do you think we'd have Medicaid? sheesh. So she has to measure the kids and she got really nasty when I asked her to explain what she wanted. Not just hand me a tape measure and say measure them. I wasn't sure if they needed 2 measurements or just 1. turns out she needed 3. So it's a good thing she did the measuring herself.
Once she was done I sent the kids back out to the car. Too many shiny objects like wheelchairs, walkers, canes, comodes, chairs that move, etc. I could see that there little eyes where darting around and the gears where turning trying to figure out what to get into that would cause the most sensory pleasure while also creating the most havoc.
She finished filling out the paperwork and then said she'd give us a call later that day or the next afternoon. I had to ask her 3 times to get the medicaid cards back and I had to ask her 4 times for our id's back. Why she wouldn't just hand them back is beyond me.
She never calls until Friday. 1 hour before close. She calls to tell me I have to have $393.00 in cash to her in 20 minutes or the deal is off on the kids getting their supplies. Why? because I have to buy one of each brand that they carry and have the children try them out. then once a brand is found that they can use and will work for them. the script can be filled out. Why? because no brand was written on the script. Also, they are only allowed to bill Medicaid 1 time per month. So they can't bill Medicaid until they know what brand the child would be getting. I asked if this was a copay and was told no this was my responsibility for using Medicaid.
I asked for it to be put in writing and it was refused. Then she agreed to have a letter for me on Monday. Come Monday she didn't have a letter. I asked why what happened to the letter and she stated that Medicaid would cover it so the letter wasn't needed. I told her that I had sought help to get her the money she requested and needed the letter for the deal to go through. She stated no letter because insurance covered it. I asked what changed in 48 hours? and she said nothing had changed so I said where's the letter? She then wanted to charge me $70.20 for a copay. Now what chickie poo didnt' know is that I called medicaid's office before entering her shop. I learned that what she was pulling was bogus. That there would be no copay because of the medical dx the dc where given and because they are still Under the age of 21. She refused to let me have the items without paying the copay. I refused to pay the copay that was false unless she would put it in writing that I was paying a copay and give me a receipt. She refused. So... I ran out of time. I had to pick my son up from his counseling appointment. We left.
Because we left and because I refused to pay the copay, she canceled our order. I don't have the supplies we needed and she is telling everyone how I don't care for my children cause if I did I would have paid the copay.
I have signed a release so our advocate could talk to her. I am hoping that he can get this mess fixed. I have spoken to others and learned that she is the worst person to deal with in the office. I am working on a letter of complaint to give to her supervisor. What is very sad is this place is part of the Catholic Non profit hospital which is suppose to be full of compassion. That other agencies and lots of people talk to others about as being wonderful and fabulous for those like myself who need compassion and understanding. No they aren't there just as money hungry as the for profit places if not worse. GRRR...
My other friend has a teenage daughter who is pregnant. The girl is not doing very well. She's really looking horrible. Thin, dark circles, lank hair, and pale complexion she looks like death warmed over. It's a radical change from the girl I saw in June to how she looked this week when I saw her. There's a history in the family of preterm labor with babies coming as early as 8 weeks. It looks like the back ache she's been having for the last week is the beginnings of labor. It's fearful that she will have the baby too soon. Her due date is Thanksgiving Day. I'm worried about her. Not because she doesn't have family and support but because I see this poor girl who has gone from having a bright sunny aura, sprakling hair, clear radiant skin, and a good attitude to being a corpse with white pasty skin, dull hair, and a dingy barely there aura. I can't tell you what it was today but I was extremely worried about her. I had all kinds of impressions and images come to my mind about her. None that were good. I did offer a Reiki session but I don't expect it to go very far. I'm just worried and feel horrible for her.
I have a neighbor who's bad mouthing us. She's afraid of her duaghter catching autism and CMT because her child didn't get vaccinated against them. She's been really trying to cause a stink here. She's threatened to hurt my kids and she's got the neighbor girl in tears. You mention the woman's first name which is the name of a cooking product and the neighbor girl bursts into tears and starts shaking. I am hoping to get my hands on the petition she's supposedly gotten going around to get me and the kids kicked out of our home because we are lowering property values by being disabled. Grrr.
I then have a friend who is so full of herself and who is making such stupid choices that I am fearful she will wind up either in jail because of some trumped up charge or because she was protecting the love of her life or she will lose her children permanently. She keeps telling me that losing her children isn't going to happen and that it's what she doesn't want to have happen and yet she won't do anything to make it so it won't happen. She's got her kids farmed out to live with other people. She barely sees them because she's got this "love interest". The talk is that the people who have the kids are going to file for custody of them. I can't blame them for doing that. I just don't know how she's so blind to it. How can she think its so cute that her daughter is calling someone else mom? How can she say that she misses putting them to bed when she never is there? She's never there cause she's with her "love interest". He refuses to call her his girl friend. He refuses to do things out in public with her. But let him get in a jam and she's got to bail him out cause he cares about her. His taking money from her babies knowingly and willingly tells me that all he cares about is her money. Otherwise, he wouldn't encourage her to leave her kids behind all the time, demand that she choose him over them and spend the money for them on him. It's a bloody train wreck and I'm sick watching it happen. I'm seriously beginning to question her mental state.
Then there is T. T had to take her child to a preschool screening. Her oldest is fine. Normal to above normal. Her baby isn't. The child is going to be 1 year in 2 weeks or less. the child tested out at 3 months. She is upset that the child qualified for services. No longer is this child her pride and joy but very disgusting. Spanking of this child started 4 to 5 months ago, and is now being boasted as the right thing apparently for this child. She is royally pissed that now the child will get free services but the strings attached are that someone will be coming into her house and watching what they are doing and checking to make sure the kids are safe. I'm trying very hard to not smack her to see if I can get her brain to work the right way. At least I don't have to worry about the kids being hurt as long as they qualify for services because the person coming to the house is a mandatory reporter. lol Maybe just maybe I'll be lucky and T will have to walk a mile in my shoes after all. one can only hope
Birthdays Stink!!!
Current mood:
I'm tired and I'm grumpy. I had a really bad day on Wednesday. It continued on to Thursday.
I've never had a good birthday away from my Gram. So I guess since she's away rather permanently I can expect this day to suck from now on.
I got harassed by a security guard. He threatened to write me up for parking in a handicap space not because I didn't have a handicap placard nor because I have handicap plates but because of the model of my car.
I was given a lincoln town car. It is huge. It is old and it was free. I was accused of "stealing my Grandma's car" because I didn't look disabled. I was yelled at for having Scout with us. Scout was in his uniform. *See August Fun Photos*
I lost it after the crappy treatment at the zoo... I complained and the guard got fired. that wasn't my intention. I'm sorry I was the x number of complaints about him. So now i have another downer for my day. The bakery lost the cake. My order for my birthday didn't get placed... it will come sometime in the next two weeks. The person I ordered from "forgot" to place it.
My kids and Ed never remembered either. I was told that I should have told them. It's marked on the calender. But why I should I have to tell them to look? Why can't the date that hasn't changed in more than 5 years for the kiddos and 15 years for dh. not register with them...All I can say is it hurt.
I have been reprimanded by the homeschool group that had the function at the zoo. That cut to the bone. It was sooo smacking of what my mother used to do to me EVERY birthday until she died.
But worse was the 5 phone calls from "friends". I honestly thought that were going to say something. Nope. They went on and on about their love life, their kids, their job, their day, their anniversary... After the 9th phone call... I couldn't hide the disappointment in my voice. So I blurted out it's my birthday. Not one of them acted like they heard me say that. I should have just ignored the rest of their phone calls for the day. I didn't. I stayed talking to them up until 11:30 p.m.
I got a call this morning from one of them. She yelled at me because I dared to mention that yesterday was my birthday. She told me she thought I was her friend and that I shouldn't focus on me so much. That I need to be more about everyone else. I was bad because I said and I quote "Today's my birthday". She admitted that I listened to her all day long and that it was only at 11:30 p.m. when I said it to her. However, she still feels that I was being too self-centered.
I don't know maybe I was. I guess my parentals where right. I'm too selfcentered and selfish in wanting a Happy Birthday. I'll try to work on it in the future.
To see Angels remembrance was so wonderful. I know that Jackie also remembered but she wasn't online because of Fay. So she doesnt count in not doing or saying cause we had already talked about it.
Zoo's are Nasty
Current mood:
I don't know what's more embarassing getting dirty looks because your autistic child is tantruming or getting kicked out of a zoo filled with home schoolers because your autistic child has a service dog.
Why were we kicked out? Because this zoo has a NO Pets policy! NO Dogs allowed. We have a dog. He is a "service dog" not a "pet". He wears a service dog in training vest. He can't wear it as a "pet". he isn't a "pet" He isn't a "therapy dog". He tends to be damn good at predicting seizures or episodes with dd. He helps her to distinguish what's real and what's not. He helps her to be able to go to places like the zoo.
In a nut shell: the zoo felt justified in kicking us out for not having Federal disabled papers, not having Federal Service Dog papers, Not having proper photo Id (it didn't have a diabled label on it so how could they be 100% certain we are disabled?), not having our medical records with us defining exactly what the disabling medical conditions we have are, not having a doctors not saying we need a service dog, not having the dogs vet records with us, not having a rabies certificate with us so they could compare the tag with the certificate, not having a city license certificate again to compare with the tag he wears, (Hello a simple phone call could have done that) not having given them 72 hours notice 1st that we were coming, not having agency paperwork saying we could have a service dog, not having a city/county certificate saying that our service dog is a legit service dog.I'm probably missing a lot of the papers we are to have but that's the highlights.
So in order for the kiddos to participate in a home school function... We had to send the dog home. Now because of that... When my dd ran into problems I was on my own. I had no helper, I had no dog to alert me that she was having an issue. I had no zoo "staff" to help me either and no other visitors in the area. My dd had an incident. I couldn't leave her for help because no child under the age of 15 is to be left unattended by an adult.. meaning she couldn't be alone. nor could her and my son be left alone. I couldn't send my son for help again because of the no child thing. I also couldn't leave her for help becuase of snakes, animals, areas she could have fallen from, water, and other safety issues. The zoo literally put me in a bad spot that I wouldn't have been in had i been allowed to have both my helpers with me.
Sure we could have stayed at the main gate until our helper returned but then we were told we couldn't loiter there either.
Can I just say I hate the zoo?
Whirlwind...
Current mood:
1975 - 2008
Flower-strewn pathways all our lives through;
God hath not promised sun without rain,
Joy without sorrow, peace without pain.
But God hath promised strength for the day.
Rest for the labor, light for the way,
Grace for the trials, help from above,
Unfailing sympathy, undying love..."
~*~
The above is copied out of the notice I received today in cold horrible black and white confirmation of the earlier phone call that came in. All I can say is that my fever racked mind is numb. Is this real or just another fever induced nightmare??? That's how I have thought for the last 23 hours 20 minutes. But I guess with stone cold black and white that it's real.
It's funny that the music that came on was 1st Another one bitest the dust 2nd Cemetary Gates.
Janel and I had a very weird coincidence in common. that is the date of our entrance into hell as we knew it. Although the years are different. I still can't believe she's really gone. Another door is shut in my face again. Another notch added to my list of regrets. I just can't get my mind to accept what my heart new was coming on the last convesation we had...I'll carry that forever with me. It's a shame I'm not catholic cause a few thousand hail mary's might be soothing... No offense to those who are.
well back to my fever induced horror.... Please someone wake me with this is an April fools...
Current mood:
I posted about Janel's death. Even shared her "memorial post"... What a sucker I am. What a complete and total fool.
It was all a lie. She didn't die. There is no Yvette, There was no baby. There was no marriage. Cancer once upon a time a long time ago...
I had talked to "Yvette" and even posted an update for her in a group that was being nasty about Janel's passing becuase of the lack of information. What a fool I was... Meanwhile, the sites where going down...
Some how or other the corner got involved. Some how or other this led to news going to a main spot for WAHM to see and then an amazing chaing of IM's emails and group posts going on. It would have been extremely smoky if smoke signals had been used. (OK I'm old).
Anyways, there were like 6 chat rooms filled to the max of people who finally learned the truth. That Janel was alive and this was all a scam... We have been in the process of pulling together files and information and bringing it all together to file reports with those local cops, NV cops, IC3.gov forms, etc.
One report is that over 15 k was taken in the form of donations money wise. Another report is roughly 300 k was taken in the form of donations, products, gift cards, etc.
I spoke to "an officer" but I'm not sure I trust what he told me. It just didn't seem to mesh up with my experience with "Good Cops" so will have to wait and see what happens.
As it stands at the moment I need to find the FBI office in Utah and see if I can get a hold of anyone there as our local field office was less than helpful. But as a freind pointed out. Children purn wasn't involved nor was any of the other exciting groups and now the unibomber is no more... What is there to turn a young FBI's heart to anything than the dull hum drums of shuffling paper and pushing pencils? She made a most excellent point. Although that's not how it is in other parts of the country.
To add to the whirlwind. Everyone here is out of sorts in the worst possible way.
1st we had a mystery virus that was pretty bad. I'm still not a 100% bounced back from it. Although thankfully the blisters are gone... 2nd the whole Janel thing is causing quite a scene here as some care to dig in the ol spurs on that one a little too deeply 3rd the normal schools out summer bs has started. How I wish we could have an enjoyable summer without fear of being caught by surprise by little children (ok not so little as they are now in the tween and teen years) who are being brought up with a zero tolerance policy for those who are disabled and different from themselves.With good friends for the kids to play with instead of no one. But that's another isssue. It's just been one huge whirlwind of a ride lately and none of it has been any fun.
How many days left before school can start again????
Tell Me we are an enlightened country...
Current mood:
Yes, I know that Martin Luther King Jr had more to do with the african-american movement and not so much with the disabled movement but bear with me. See being who I am and having been discriminated against, harrassed, hated not for the color of my skin but because I have a disability... I look normal upon 1st glance so I have been accused of being deliberately deceptive. I have the rage flare up unexpectedly when my dirty secret came out. So, Martin Luther King Jr and Rosa Parks is where I got inspiration, hope, and courage from. For I saw it as being more than just an african-american thing but as a disability thing too. So yes, I'm guilty of my view being screwed.
My goal in this to cause one to pause and think and get back on track. to enspire all of us to get enlightened and to bring it out all the time not just when it's politically correct to do so..
So tell me are we enlightened as we claim to be? I think not. I don't think that we are changing for the better. Alex Barton's story is the reason why.
Tuesday, May 27
Action Alert from The Autistic Self Advocacy Network...
Hello,
As some of you may already be aware from news articles and blog posts on the topic, last week a Morningside Elementary Kindergarten teacher had students "vote out" of the class a 5-year old autistic student named Alex Barton. According to the news article, the teacher had each of Alex's classmates, including his sole friend in the class, state publicly what they disliked about him and then announced that they would take a vote to remove him from the class. Alex has not been back to school since and has suffered significant emotional trauma as a result of this incident. Regardless of who you are or what your connection to the autistic and autism communities might be, I think we can all agree that this is unacceptable.
We need to band together to prevent future such abuses from occurring, to ensure that this teacher is properly disciplined and to encourage this school to adopt both a strong bullying prevention policy and training on respect for all forms of diversity aimed at both teachers and students. As such, we've provided contact information below for you to write to communicate your outrage. Please be polite yet firm in your comments, pointing out the unacceptability of such actions when aimed at any student, as well as the need for this school to adopt policies to prevent this from happening in the future. This is an opportunity to drive home the message that we will not stand by while one of our own is abused. We ask that you please cc: info@autisticadvocacy.org in your e-mails to the school district so we can keep track of the strength and sources of this response. Remember: abusive messages hurt our cause - please be respectful in your comments.
Contact info:
Morningside Elementary School Principal:
Mrs. Marcia Cully
cullym@stlucie.k12.fl.us
(772) 337-6730
St. Lucie County Schools Superintendent:
Michael J. Lannon
4204 Okeechobee Road
Ft. Pierce, FL 34947-5414
Phone: 772/429-3925
FAX: 772/429-3916
e-mail: lannonm@stlucie.k12.fl.us
St. Lucie County School Board Chair:
Carol Hilson
772-519-0397
HilsonC@stlucie.k12.fl.us
Vice Chair:
Judith Miller
772-528-4545
MillerJ@stlucie.k12.fl.us
[Thanks to Paula C. Durbin-Westby for compiling this contact information and for members of the autistic and autism communities who have supported this effort.]
Regards,
Ari Ne'eman, President,
The Autistic Self Advocacy Network
1101 15th Street, NW Suite 1212
Washington, DC 20005
http://www.autisticadvocacy.org
732.763.5530
_____________________
Distributed to APRIL members at the request of Tink Miller tmiller@pirs.org , by:
Diana Spas, Information Coordinator
RTC: Rural: The Research and Training Center on Disability in Rural Communities
The University of Montana Rural Institute
52 Corbin Hall, Missoula, MT 59812-7056
(888) 268-2743 (RTC office)
(406) 243-5760 (my office) (406) 243-2349 fax
dspas@ruralinstitute.umt.edu
http://rtc.ruralinstitute.umt.edu (RTC: Rural)
http://mtdh.ruralinstitute.umt.edu (Montana Disability and Health Program)
Who Knew...?
Who knew that jewelry making could be so much fun?
Who'd of thought that I could do it?
Who'd of thought I could do it and have it actually turn out?
Sure the heck wasn't lil' ol' me.
I had tried beading a time or two as a kid. One word sums it up best. DISASTER!!
That is the word that was used repeatedly by my mother. How did beading go today? It was a Disaster. How did she do this time? It was a Disaster. I don't want to ever take you back cause you turn everything into a DISASTER!!!!
Yep, that's right. That's what I heard repeatedly during a 3 week stint of a trial Beading Class. We were to make these really pretty beaded Angel ornaments for Camp Fire. Instead... I made something that resembled more of a tulip*. Instead I got 3 weeks of the standard comments of "your lazy", "you don't pay attention", "you don't try enough", "your a Disaster", "your a horrible child", etc. etc...
Is it any wonder that I never felt like I could do it?
Meanwhile, my mother got to be good friends with the beading teacher. She saw my mother sitting there waiting and how she seemed both miserable at the dull time of waiting for me to get done and also left out. So the teacher showed her how to work some beads to make doilys to kill the time of waiting for me.
My mother was a natural. She caught the concept of the pattern easily. It wasn't very long at all, that she really took off flying with it. Soon she was creating various sizes and patterns. In fact for one Christmas that was what everyone got along with their regular gift. Some beaded doily or set of beaded doilys.
In the evening after supper, she would get out her beads and bead. I would always find some excuse to be near her workspace and watch her. Depending on her mood I would either be allowed to sit near her or be sent scurrying off with different items, packages of beads more often than not or else something small and handy and just as effective, chucked at my head or chased off by her with a wooden spoon in one hand.
Sometimes when I was allowed to remain she would talk to me usually it was to rub in further what a heart breaker I was to her. She would often list my many faults especially if my step-dad (then) was in the room or in hearing range. Othertimes, she would be nicer and she would talk to me about what she was doing and who she was making it for. On extremely rare occassions she would ask my opinion or help in picking out the color combos for the next project.
She never offered to let me learn from her. Nor did she encourage me to attempt another beading project after the trial period was up. She also really disliked anyone attempting to suggest that she should teach me or that another project should be tried by me.
So I stopped thinking about it. The pain was just too great. But don't get me wrong. That wasn't my only attempt to learn how to bead.
I had a friend who was Native American. Her mom, aunts, sisters, dad, brothers, and numerous other family relations all beaded. They beaded earrings, they beaded moccasins, they beaded amulets, they beaded dresses. They did simple beading like what I am now learning to do. They did complex picture beading that helped to tell stories and where used in their family traditions and ceremonies. They used a loom to do some beading projects. They also did it for competition, honor and to strengthen the bond in the family.
I always admired their beading projects. I once rudely wished for a pair of earrings. I was so surprised, and very, very happy when I got a pair of earrings for my birthday from my friend. I think I thanked them about a zillion + times for several weeks. lol
That lead in the elder aunt suggesting that they try to teach me a basic design. Nothing sacred, nothing complicated, just two basic colors repeated on a thread. I could if mastered make a simple necklace or loop earrings.
It went pretty well. There wasn't much I could screw up in the work I did. After all I had to do was string the beads x amount of one color then y amount of another onto a single thread to form a chain of beads. Since I could easily do this with macarroni, it wasn't too bad for me to do. Although I will admit that it took a long time to get those itty bitty seed beads to get on my needle and thread without scattering every where or coming off. These solid lines of colors where used to make dangle earrings. The kind that have just loops but several loops on a wire...
So then they moved me on to a bit more complicated piece. Same two colors, similar pattern but with more than a single solid straight line. There were 4 rows and some sewing involved. I was excited to be able to move up to a level that the youngest 4 year old was doing. I felt pretty good about that project when it was done, too. Granted it wasn't flat and smooth like thiers but it was accepted since I was a novice and not born to beading like the family members where. I just needed a lot more practice they said.
So then came the next disaster. My mother was wondering where my money was going as she wasn't finding things around the house like candy wrappers, craft supplies, tapes, etc. She had heard I wasn't going to the candy stop any more nor was I going to the ice cream shoppe. She followed me and caught me going to the bead place with the elder aunt. She got suspicious. So, she decided that my next playdate she had to come along, much to my horror.
I was going to start a new project. Under her watchful eye and polite conversation I knew that I had to prepare for a major outbreaking of her wrath when we returned home. Knowing that something dreadful was going to happen but not knowing what... I started to sweat. I had pieces of my heart chipped away as I listened to the conversations with my mother flow around me. Her utter dismay and accusations about my work chipped away at my center. Instead of being focused, I was scattered. Instead of feeling competent, I felt like an idiot. I messed up very badly in the end. I again,had created yet another disaster.
When I got home I paid a heavy price for my deception. By the time I got back ties with my friend had been completely and irrepairably severed. I gave up on beading anything. At last the lesson had been beat into my thick skull, although a small part of me longed for another chance.
We moved. I got a job cleaning greenware for a local ceramics maker. One day in helping her straight up the room I came across a box of beading things. We struck up a conversation about beading. She didn't seem to be too horrible about it. At the very least she was very different than my parents. After work, I went home and dug out the instructions for those angels I had once upon a time tried to make. It took me several weeks to drag up the courage to give her the instructions.
When I finally did. She took them and read then through and then laughed out loud. I felt all my spirit drain away. I steeled myself for another lecture about failure. Turned out that she knew why I had failed. She said that it wasn't my fault and that anyone working my instructions that actually knew a bit about beading would have figured out why I kept failing. Both the instructions and the kit I was given had errors in them. My kit was missing two very crucial pieces that should have been clearly caught right off the bat or at least after I completed step 2 because up to that point both patterns where the same. Had I had the center body piece, I could have copied the others and completed a different angel. Instead, I made tulips because that's what my instructions from step 3 on where for. No one had ever considered that the instructions might be faulty nor did any one consider that the kit might not be for something else. With this knowledge a little spark came to life.
Part One....
What's the definition of insanity again?
Current mood:
The terms psych, pdoc, shrink are all going to be referring to psychiatric stuff, like doctors, offices, etc.
We got word that K's pdoc is closing his practice. So the scramble to find a new pdoc is on. Now I'm dealing with a lot of people who just DO NOT get it. To them it's simply a matter of calling a shrinks office and scheduling an appointment...
For us it's a bloody 3 ring circus. ring 1 is finding a doctor who's willing to accept K as a patient and has openings... ring 2 is finding them willing to accept her but also willing to take the medical coverage we have cough*Medicaid*cough and to be approved for services ring 3 is documenting that I'm not guilty of bad parenting, psycho, nor have Münchhausen's by Proxy (MBP).
So far out of the list of places I can go to: I can rule out the Mental Health Center (MHC), One psych practice (HP), and 1 to 2 other psych practices (D or SV). I've got calls into places... Now it's just wait and see what comes up.
I can rule out the MHC because they have very high turn over and a new "flavor" of the ____ (day, month, week, quarter) not good for someone with trust issues. 2nd I can rule them out because they don't want to keep her on the program that has worked so well with her so far. And one thing I have learned about autism is if it's not broke don't mess with it. and the final reason for not dealing with them is they want to change her meds to things that are more politically correct. Yes, I know there is a lawsuit going on about the med my child is taking. No that doesn't make me a bad parent it makes me a freaked out parent who's more terrified of what will happen without said med than what will happen with it. Hence, why the requested blood draws to check blood sugars with crossed fingers.
I can rule out the one psych practice HP because they are heavy with an agency here that we were involved with once upon a time. That agency was very heavy into not advocating well for us. Or as the one doc put it they were really good at sabotaging our efforts for her to get a descent program in place for her so it was clear in their eyes that the agency wanted us to fail so they could swoop in and save her from us and get more funding for their program which would be worse for K than what she was in. Sadly since ending with the agency I've heard this from numerous other sources that this is in fact how they have operated with others on more than one occasion. So not going to fall back into that pit again. Besides they are very pro getting her off what is working now and on to something more politically correct based on it being politically correct. Who needs that?
I can rule out D simply because we had been with them and we had been asked to remove ourselves from their program. Why? Because of my mother having words with a nurse. My mother got rather verbal with a nurse and that caused the nurse to remember who I was from a dark dark chapter in my past. Since she remembered who I was; she also remembered a scene that happened with her friend and me. Again this was a very bad thing that happened and to this day HASN'T BEEN REPEATED. And wouldn't have happened had her friend not decided that she knew better than me as to what I was to do. She actually yelled at me that she knew who I had been talking to and what their instructions where. It's a long horrible story and to put it short and sweet. I had called and talked to my pdoc and counselor who advised me to get to the pdocs office NOW!!!
Because I was having an issue with my medication and some PTSD. The gal tried to stop me from following my pdoc's orders and repeatedly claimed that she was right and I was wrong. Even after both my pdoc and my counselor agreed that if I hadn't been chased down, threatened, told that I didn't know what was happening, and exposed it probably wouldn't have happened. It also was a clear indication that my meds needed to be changed. And since going off the meds a repeat incident hasn't happened. However, it has cost me getting neurological care for the last 15+ years, it has cost me getting psych care for my children for the past 11 years. And what really makes me frustrated is the fact that we can lose said care and be kicked out of a practice based on one nurse's friends incident. NOTHING had ever been said or done towards this nurse that could be put in the same league as her friend. Yes, we asked questions, Yes we demanded answers Yes, we argued about the orders and getting a diagnosis but we didn't shriek, hit, punch, chase, corner nor rip clothes off to get them. And the worst of it is we had a good working history for several months with no indication of a problem until her memory was jogged and we were dropped all in the space of 10 minutes of time. She interrupted our session told the pdoc her sudden revelation and he came in and instead of giving us help told us to get out of his office and out of the practice. To this day they pdocs at this place refuse to deal with us based on the fear for safety of this 1 person based solely on what happened to her friend. (BTW, I never was charged for anything)
The other practice I have a call into SV. The only reason I have a call into them is that K's counselor placed the call to refer her to them again. I got the call back from SV's office but wasn't able to take or return the call until today. It will depend totally on what the practice decides as to if we will or won't be allowed to go there. The poor gal who took the call was surprised to learn why we left. She said that one of the temp secretaries had told her the same version I told her but that she had heard from another more respected person that it wasn't true. She has her doubts about us being seen. She even dared to ask why we would even want to attempt to come back there. And honestly I said I didn't think we had a chance to get help from them but with no pdoc we had to try. However, their is a new pdoc fresh from school coming in Aug./Sept. that she might see about us getting into. I will have to bring in letters of recommendation stating that I don't have MBP and that I haven't had a repeat of the episode that involved me losing control again in the last 20 years.
Now the reason that there is an issue here is 2 fold. Problem 1 is that the pdoc we saw used the word and phrase combos of autism, autism like, high functioning autism and atypical autism numerous times. There was an advocate from an agency with us at the appointment she counted 37 uses of the word autism, 17 uses of the phrase atypical autism, and several other combos numerous times. But she refused to come right out and dx K with autism. Now in getting a copy of K's medical file from them... There was a statement that this pdoc had diagnosed K with autism but to this day this pdoc denies it. The other part of the problem is we had a schedule issue. K flipped out and refused to go inside. I couldn't physically make her and she was in such a rage that I needed help so I went inside to get help and was told that no one in the office could come help us. Now ironically this was why we were sent to see this pdoc in the 1st place. Yeah we were late for our appointment because we couldn't get K off the post, through the door or out of the elevator. but we were also there for our appointment all the pdoc had to do was come out of her room and assist with talking K down. Again we were kicked out of the office and safety was mentioned as a concern. So this is why it could be decided that we won't even get to see the new doctor.
I do have calls into 2 other pdocs... But not sure if it will work for us to get in there.
The good news is the ped. has decided that he can write the notes for home school, gfcf diet, inositol, melatonin, filtered water, and Epsom salt baths. That's a huge thing. He won't do the meds since they are out of his league.
The other possibility is to see an OB nurse thingy...I know I'm horrible. I don't know how you describe those who want to be doctors (have intense god complexes) but won't go back to true medical school to become a doctor...We have the chance to take K to see one for her psych meds. I'm a little concerned about a non-pdoc writing scripts and being comfortable prescribing major big gun type psych meds when most regular docs wont, kwim? There will be no problem with her giving you meds for this even when most won't because of the lawsuit... I agree that K will need this type of nurse wanna be doctor eventually but I'm not sure now... And just how bad is it going to be when I say I don't want the new HPV vaccine because I don't want to risk another vaccine reaction??? Besides the pdoc, pediatrician, naturopathic doc all feel this isn't necessary at this time because she's least likely to need it based on where she goes to school. and how she's not alone on her own at all. I guess we will find out on Tuesday...
Now for E... He went in for a review about the PTSD. It will go before a committee and he'll get the results in 2 to 3 weeks. All I can say is that I wish the committee could have spent time with him leading up to his review and after his review on the way home... It might have just left the impression that he still needs help and that he's not getting the help he needs as it stands. I thought that we were going to die at least twice and that's the bare minimum of times it crossed my mind. It reminded me of a remark that a relative used to make about Catholics. he always claimed to admire them because they always had something to do in the event of a crisis or waiting for a crisis to hit (meaning foxhole in WWI & WWII) cause they would do the rosary. This is not to offend or belittle Catholics just noting an observation that was told me. I seriously wished I had something similiar to do that would have taken my mind off of the close calls. ;)
The other thing that this week has done is caused me to seek out people for statements that I don't have MBP. Relocating sounds like sooo much fun... Just don't have a clue as to where I should even consider going....
Guess I'll just consider jewelry class in a few minutes... lol
and yes, I'm reliving my days of freedom
Beading Class
Category: Fashion, Style, Shopping
It was an interesting class cause I was the only one that showed up for it. So of course I got the deluxe sales pitch...
I have some poor pictures of what I made I did a 3 piece set. earrings, necklace and bracelet. Took me 3 hours to do it in. lol And I tried to use the cheapest supplies too. Not that I am cheap just I don't have a lot of money to spend. So no there is no sterling silver in these and yet it might as well be cause it was darn expensive to make.
i think I did disappoint the owner/teacher. After all I leaned towards the cheap beads and shell that she had instead of her prettier and more expensive pieces. One gal came in to do the same necklace that you see I made and it's going to be pretty pricy... Her focal piece was $24.99 alone...
I also got to see two old friends from my Girl Scout days... hard to believe my little brownie is already a Junior scout. A 5th grader doing jr. high work doens't surprise me any cause she was the smartest in our troop.
It was a nice blast down memory lane.
My next class is this weekend... If I survive the convention that is...
Mother's Day
Current mood:
Mother's Day is here again...
To all my friends who happen to be mom's also...
May you treasure the moments and memories that come with the gift of motherhood!
I wish you all a very Happy Mother's Day!
To me this is a day that I tend to take time out and remember those women who have passed on that had a significant role in my life. Those who "mothered" me or "adopted me as a grandchild", those who looked beyond the color of my skin, my pedigree & blood lines, who looked to see the real me. As one would often say I was her diamond in the rough.
It used to mean making cards and finding the right item and then later phone calls and Hallmark greeting cards... Now it's filled with remembering them and for a few of them... regrets that I didn't take seriously the time we had, the lessons lost... and yet being thankful for all that these women did for me and hoping that I will be able to make them proud of me someday... some how... I worry that I won't ever be able to do this.
I also took this day to hide away from those who are very opinionated (T as an example) and the one who chose today to be a day of attention seeking and so she can get patted on their little heads for a job well done (mil)... Why she won't take a hint and leave us alone is beyond me...
today was spent with lots of crying... My daughter was terrified that a certain visitor would stop by and she'd have to interact with her. My son was crying because his dad wasn't following through on his promise to take them out so they could take me out.... to end the crying my aunt took them to the park... which was a really good thing to do cause the one who was feared did stop by...
Thankfully I was busy in a phone call so I had an excuse not to hear the ringing of the door bell and banging on the door. I just didn't feel like listening to the usual self important ramblings that go along with the visit from her. I just didn't want to be told yet again that I am not a good enough wife, dil, let alone mother...
I didn't want to have to hear from their dad how wrong I am in all I do feel and think.
I took time out to clean my house in peace, to work on my website with the new business links under Gifts... and to get traffic to the sites...
This is one of those holidays... that I struggle with to understand how I'm suppose to be... Cause I don't think hiding cowaring in a corner is the right thing to do any more especially now that I'm a mom... Yes, after the phone calls and card sending out was done... Somewhere before dinner... the duck and cover would need to be enacted... and usually after dinner too... with the annual reminder of how I messed up her life as the way to say off to bed...
I struggle with understanding that what is seen on tv and blasted around isn't my lot. My kids don't get Mother's Day and they never will. This used to make me sad but it don't any more... I guess because I'm still so confused about what is supposed to be done. I try really really hard not to follow the script of my childhood. I try not to shriek and I try not to yell. But beyond that I'm really lost...
Am I foolish to hope that for me it's treated like a normal day? That it can be spent like any other Sunday would be... No going out, no dinners, no having to be any where so I don't have to try to figure out what script I'm to follow...
As it stands it's just another day of tears and strong emotions as the kids live in panic and terror that they will have a visit from someone they'd perfer not to see. Ah, at least that is a script I can follow. lol send them off to the park with connie...they get the outside time they crave, they get to see something different and they don't have to worry about running into to the one they want to avoid for the most part. Hope their dad sleeps for a long time and gives up...so it can just a day that i can spend quietly in sorrow for those that have gone on, and regret that I didn't pay closer attention to them.
If I am lucky... I can drop the mask of the mom I am for awhile. I can allow the agony I feel to shine through. I can be thankful for the autism and the alphabet soup dx's cause then maybe I won't screw them up so horribly in the long run. I can allow myself the moments of fear, doubt, resentment, tears over the legacy I am leaving behind. I don't know what to do to change it. I just don't have a clue and that is so frustrating.
Instead I count the hours down... Hoping and praying that it won't be too horrible a day... that it won't be noticed for very long... and that I can sink back into sweet oblivion of just another day in my life.
Did ya miss me
Current mood:
Sorry to be mia... Life has thrown a bunch of curves my way...
1) for some reason the stupid puter is being mean and picking and choosing what I can and can't get into... this goes for sites, here, and groups and forums in other locals...
2) we've been busy with medical appointments... Just getting back from a break neck trip to Shriners.... I am hoping that we never have to attempt to sleep in a vehicle again.... more on that story later...
3) Get to repeat 2 soon... gas prices are scary and no help is frustrating...
4) trying to finish the school year out... we finally got our hours... but we will be repeating this year... not sure how I feel about that... Other than to say we did manage a lot of life lessons this year that we wouldn't have gotten otherwise....
5) CT's is really stretching me outside my comfort zone but I guess it's good to grow.... I'm going to be taking 3 new classes to the benefit of CT. I also picked up a few more companies for CT's....
6) still guessing at our monthy income... and playing russian roulette with the bills... Who's going to be paid this time around???? I'm still very teed that I was turned into a collection agency because 2 car insurances and 2 private Medical coverages are still duking it out on who's going to pay what and when....
7) We are glad to report that Janel is home from the hospital and on the road to health. Unfortunately she too is playing russian bill roulette also and is having to look at how to afford yet more surgery from the cancer's spread and the kidney. When these will happen depends on a) $$$$'s and b) finding a donor and c) lots and lots of more $$$$'s. What is extremely frustrating is that their are two minimum sicko's out there. One is calling this a hoax... Why? because said person is too narrow minded to see that an ailment, disease, condition of having cancer isn't a 1 time expense but an ongoing recurring lots of little odds n ends of expenses.... Said person feels it's a hoax because of the ongoing and continuing fundraising that has been happening... It's the little minded people like this that are frustrating beyond all belief. Not to mention someone had the nerve to ask for their donation back....and others are not following through with their part of the bargain... I am boggled as to the low lifes in the world...
But to end on a more positive noteWe are all enduring more "stomach-less" jokes but that's ok... Am still planning on getting to see her sometime in the near future.
8) My daughter is doing much better in some regards since starting the meds thanks to Janel. She's also not doing so good mentally she's finally to the place where healing can take place... So we are on the rocky road of trying to help her process and heal without dragging on and kicking a dead horse of a problem....
9) Waiting on the results of said son's medical testing. It was cool to watch him light up and flash on the camera and see how he moves on the computer screen.
All in all life is ok. Am missing my friends... And seriously jealous cause pool don't work for me but I'll get over it eventually some day....
Current mood:
Sorry to be mia... Life has thrown a bunch of curves my way...
1) for some reason the stupid puter is being mean and picking and choosing what I can and can't get into... this goes for sites, here, and groups and forums in other locals...
2) we've been busy with medical appointments... Just getting back from a break neck trip to Shriners.... I am hoping that we never have to attempt to sleep in a vehicle again.... more on that story later...
3) Get to repeat 2 soon... gas prices are scary and no help is frustrating...
4) trying to finish the school year out... we finally got our hours... but we will be repeating this year... not sure how I feel about that... Other than to say we did manage a lot of life lessons this year that we wouldn't have gotten otherwise....
5) CT's is really stretching me outside my comfort zone but I guess it's good to grow.... I'm going to be taking 3 new classes to the benefit of CT. I also picked up a few more companies for CT's....
6) still guessing at our monthy income... and playing russian roulette with the bills... Who's going to be paid this time around???? I'm still very teed that I was turned into a collection agency because 2 car insurances and 2 private Medical coverages are still duking it out on who's going to pay what and when....
7) We are glad to report that Janel is home from the hospital and on the road to health. Unfortunately she too is playing russian bill roulette also and is having to look at how to afford yet more surgery from the cancer's spread and the kidney. When these will happen depends on a) $$$$'s and b) finding a donor and c) lots and lots of more $$$$'s. What is extremely frustrating is that their are two minimum sicko's out there. One is calling this a hoax... Why? because said person is too narrow minded to see that an ailment, disease, condition of having cancer isn't a 1 time expense but an ongoing recurring lots of little odds n ends of expenses.... Said person feels it's a hoax because of the ongoing and continuing fundraising that has been happening... It's the little minded people like this that are frustrating beyond all belief. Not to mention someone had the nerve to ask for their donation back....and others are not following through with their part of the bargain... I am boggled as to the low lifes in the world...
But to end on a more positive noteWe are all enduring more "stomach-less" jokes but that's ok... Am still planning on getting to see her sometime in the near future.
8) My daughter is doing much better in some regards since starting the meds thanks to Janel. She's also not doing so good mentally she's finally to the place where healing can take place... So we are on the rocky road of trying to help her process and heal without dragging on and kicking a dead horse of a problem....
9) Waiting on the results of said son's medical testing. It was cool to watch him light up and flash on the camera and see how he moves on the computer screen.
All in all life is ok. Am missing my friends... And seriously jealous cause pool don't work for me but I'll get over it eventually some day....
